Can a special needs trust include mentorship program participation fees?

The question of whether a special needs trust (SNT) can cover mentorship program participation fees is a common one for families planning for the long-term care of a loved one with disabilities. The short answer is generally yes, *but* with critical considerations to ensure compliance with Supplemental Security Income (SSI) and Medi-Cal eligibility rules. SNTs are powerful tools designed to provide for the needs of a beneficiary without disqualifying them from crucial government benefits. These trusts allow for supplemental – not primary – support, meaning they can fund expenses not covered by public assistance programs. However, meticulous documentation and careful consideration of the program’s nature are essential to avoid benefit disruption, as roughly 65% of individuals with disabilities rely on SSI as a primary income source. The fees associated with mentorship programs fall into a grey area that requires thoughtful evaluation.

What expenses *can* a special needs trust cover?

A special needs trust can generally cover a wide range of expenses that enhance the beneficiary’s quality of life, *beyond* what government programs provide. This includes things like therapies (occupational, speech, physical), recreational activities, hobbies, specialized equipment, travel, and even personal care services. Crucially, these expenses must be considered “supplemental,” meaning they don’t replace what SSI or Medi-Cal would normally cover. For example, if a beneficiary receives therapy through Medi-Cal, the SNT *cannot* pay for the same therapy. However, it *can* fund additional sessions, specialized techniques not covered by Medi-Cal, or related travel expenses. According to the Social Security Administration, approximately $82.1 billion in SSI benefits were paid in 2023, highlighting the widespread reliance on this program – and the importance of maintaining eligibility.

Could mentorship program fees be considered ‘medical’ expenses?

This is where it gets tricky. If the mentorship program is directly related to addressing a specific disability-related need—for instance, a program designed to improve social skills for an autistic individual, or vocational training for someone with Down syndrome—there’s a stronger argument for it being considered a permissible expense. It could potentially be categorized as a form of therapy or rehabilitation. Documentation from the program provider outlining the specific therapeutic goals and how it addresses the beneficiary’s disability is crucial. However, if the program is primarily social or recreational in nature, it might be viewed as a discretionary expense and could jeopardize benefits. It’s vital to avoid funding activities that could be seen as replacing services already provided by public assistance programs. A proactive approach, consulting with an experienced estate planning attorney specializing in special needs trusts, can clarify these nuances.

What happened when the Smith family didn’t plan carefully?

Old Man Tiber, a weathered fisherman, always told his granddaughter, Lily, stories of the sea. Lily, born with cerebral palsy, found immense joy in those stories, but struggled with communication. Her parents enrolled her in a wonderful mentorship program, designed to help young adults with disabilities develop life skills and find employment. They began paying the $1,500 monthly fees from Lily’s SNT, failing to consult with their attorney. Six months later, Lily’s SSI benefits were suspended. The agency determined the SNT was providing more than “supplemental” support and that the mentorship program wasn’t demonstrably related to her disability-specific needs. The Smiths were heartbroken and faced a difficult situation, needing to quickly adjust Lily’s care plan and appeal the decision. The cost of the legal battle alone nearly equaled a year of mentorship fees.

How did the Johnson family ensure smooth sailing with their trust?

The Johnson family, learning from others’ mistakes, approached the same mentorship program with a completely different strategy. Before enrolling their son, Ethan, they meticulously documented the program’s goals and its direct correlation to Ethan’s disability. They obtained a letter from the program director detailing how the mentorship would specifically address Ethan’s social communication deficits, as identified in his individualized education program (IEP). They then consulted with Steve Bliss, their estate planning attorney, who reviewed the documentation and confirmed it aligned with the SNT’s guidelines. Steve Bliss also advised them to create a detailed spending log, demonstrating how the mentorship fees enhanced Ethan’s quality of life *without* replacing existing services. Because of their thorough preparation, Ethan continued to receive his SSI benefits uninterrupted, thriving in the mentorship program and developing valuable life skills. The Johnson family understood that a well-structured trust, coupled with proactive legal counsel, was the key to securing Ethan’s future.

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About Steve Bliss Esq. at The Law Firm of Steven F. Bliss Esq.:

The Law Firm of Steven F. Bliss Esq. is Temecula Probate Law. The Law Firm Of Steven F. Bliss Esq. is a Temecula Estate Planning Attorney. Steve Bliss is an experienced probate attorney. Steve Bliss is an Estate Planning Lawyer. The probate process has many steps in in probate proceedings. Beside Probate, estate planning and trust administration is offered at Steve Bliss Law. Our probate attorney will probate the estate. Attorney probate at Steve Bliss Law. A formal probate is required to administer the estate. The probate court may offer an unsupervised probate get a probate attorney. Steve Bliss Law will petition to open probate for you. Don’t go through a costly probate. Call Steve Bliss Law Today for estate planning, trusts and probate.

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